The Pediatric Complex Care Association’s advocacy efforts provide a national voice for our member organizations by offering assistance, advice, and access to governmental agencies. We believe that it is essential to share the expertise and challenges of our member organizations with legislators, regulators, and health care agencies as we work to build solutions and support and strive to provide the best in care for these special children and their families.
Our Advocacy Committee is responsible for:
- Developing and implementing an advocacy plan to include strategies for advancing our agenda/priorities and key partnerships
- Providing member education and resources related to advocacy
- Representing the Association and its member organizations on federal issues
- Providing state-related advocacy support to individual PCCA members as requested and appropriate
FEDERAL ADVOCACY
2022
- PCCA joined with a coalition of post-acute and long-term care partners to request that the US Department of Labor improve its process/timeliness of issuing prevailing wage determinations for Schedule A petitions, which is limited to physical therapists and registered nurses
- PCCA provided its members with information on Congressional Committee Leadership for the 2023 Session
2021
- Member phone call with physician staff from ICE regarding services to children presenting at the US Southern border with complex medical needs
- The PCCA Advocacy Committee presented a Member Forum on “Impact & Opportunities of Federal Workforce Initiatives for the PCCA Network”
- PCCA has joined with coalition partners to strongly urge the US Department of State to expedite visas for nurses and skilled health care providers
2020
- Submitted a request to Centers for Medicaid & Medicare Services requesting exemption from some Covid testing requirements for children residing in pediatric post-acute & long-term care settings
- Met with staff from the offices of Sen. Grassley & Sen. Wyden to discuss support for the PCCA request that CMS develop a pediatric Minimum Data Set
- Met with CMS staff regarding the development of a pediatric minimum data set
- Provided Congressional testimony on the CMS proposed Medicaid Fiscal Accountability Rule, in conjunction with the American Health Care Association
- Supported appointment of a representative from a member organization to the federal COVID Commission on Safety & Accountability in Nursing Facilities
2019
- Updated and redistributed the white paper prepared at the request of the Center for Medicaid & Medicare Services, Children and Young Adults with Medical Complexity: Serving an Emerging Population
STATE ADVOCACY
2021
- Prepared a support letter for a member whose state agency proposed to allow unlicensed staff to provide skilled nursing care in nursing facilities
