About Us

Vision, Mission

The vision of the Pediatric Complex Care Association is uniting organizations to provide a combined voice and promote excellence of care for children with medical complexity and their families.

We are a national, non-profit organization whose mission is to create opportunities for organizations to collaborate, network, share innovations, advocate, and promote excellence in the continuum of care for children with medical complexity and their families.


The Pediatric Complex Care Association has its roots in the Building Bridges Network that was founded by Sister Katherine Smith, Phd, RN of the Sisters of Providence in Portland Oregon in the early 1990’s with the mission to link pediatric post-acute and residential facilities around the country. The Network, which benefited from a group of volunteer leaders gleaned from these organizations, provided opportunities for ongoing education and networking through a series of conferences, with the initial meeting in Portland Oregon in 1997. Building Bridges also collaborated with the Centers for Medicare & Medicaid Services (CMS) on the development of a Pediatric Minimum Data Set (MDS) tool along with producing a document defining Model Practices in Pediatric Nursing facilities.

As educational conferences grew, a core group saw the need to create a more formal membership organization to perpetuate Sr. Katherine’s legacy while expanding services and members. These leaders developed the organizational structure, by laws and legal documentation resulting in the incorporation of a not for profit entity Association of Providers for Children with Complex Medical Needs, Inc. in 2012.

A generous grant from Portland’s Providence Health and Services coupled with funds provided by the Pariseau Corporation, Sisters of Providence from the Building Bridges account, has provided the seed money to begin the new organization’s work, including the hiring of a part time Executive Director. In early 2013, the Board voted to simplify the Association’s name and now does business as the Pediatric Complex Care Association.

The Pediatric Complex Care Association is grateful for the initial vision of Sister Katherine Smith, Phd, RN and the start up support provided by the Sisters of Providence and Providence Health & Services. We look forward to expanding on the mission and vision of Sr. Katherine and the initial organizers of Building Bridges to help improve the care and quality of life of the special children we serve.